Maureen Turner

Chief Executive Officer
BioGrid Australia

2:50 PM CASE STUDY: Clinical Research Data Sharing to Improve Current and Future Health Outcomes

Sharing of clinical research data strengthens clinical research by providing access to larger patient cohorts or more data on a given cohort.
Research questions that are not viable to investigate in a single data source, due to lack of sufficient numbers of relevant patients or limitations in the richness of data, can become feasible. However, two critical issues must be addressed to support this type of collaborative clinical research: (1) protection of patient privacy, and (2) linkage of data relating to the same individual in multiple data sources.

A key initiative addressing these issues has been the development of BioGrid, a federated framework for privacy-protecting sharing of clinical research data that gives authorised clinical researchers access to rich data sets for ethically approved research projects.
  • Benefits of sharing clinical research data including sharing of knowledge to improve current and future health outcomes
  • Health data analytics and semantic information
  • How can clinical researchers effectively leverage data sharing?

Case study: BioGrid Australia:
  • Overview of BioGrid and current areas of focus
  • What is a federated model for data sharing?
  • What’s next for BioGrid?